I try to raise awareness about Endometriosis every March, and apologies that I’m a little (ok, a lot) late this year.
Truthfully, it doesn’t matter which month you raise awareness for a chronic illness. I’ve shared a portion through-out the past eight or so years, so I feel I’m some-what doing my bit.
For those who don’t know my back story, I was diagnosed with stage four Endometriosis in January 2015. It wasn’t really talked about back then.
Fast forward to today, it’s becoming more and more recognised which is amazing! The amount of awareness for this cruel illness on social media is incredible. As well as on the news, radio and apparently there is talk of a film on it too.
Endometriosis can cause many many complications from extremely horrifying periods, to bowel problems, infertility issues, affecting one’s mental health, multiple miscarriages, endometriosis filled cysts on or around the ovary or ovaries and much much more.
Many are actually misdiagnosed, I know I was through-out the years before confirming I had endometriosis through surgery. I was told on many many occasions I was suffering from IBS and not taken seriously.
I think for me as the years passed, and is highly important to highlight is the infertility and trauma that comes with Endometriosis.
I was told back in 2015 that I would not be able to have children. And I was only 25! I was in no shape or form ready to have kids. I’m 33 now, and have had an unsuccessful attempt at IVF in January 2020 which went horribly wrong and it’s the reason why I had a stoma for two and a half years and lost an ovary along the way too.
Long story short, they punctured my endometriosis cyst during egg collection and my insides got infected.
It was apparently one of the messiest operations my surgeons had ever seen.
Endometriosis has affected me and my husband in more ways than I can imagine, and now we are exploring and in the very early stages of Donor Egg IVF (also known as DEIVF). I talk about this here if you’re interested.
I don’t actually know many people who have gone through DEIVF, it’s not really talked about much and that as well needs to change. I will try my best to share as many details as I possibly can on here and on the gram over the next few months, or years.
Anyway, where was I…
Here are some of my blog posts I’ve written on Endometriosis, IVF and DEIVF over the years.
Finding Out I Have Endometriosis 7 Years On
The Struggles of Infertility: How to Support Each Other Going Through IVF or DEIVF
Endometriosis Awareness Month: #EndotheStigma
Endometriosis Operation Update
A Gentle Routine to Pick You Up When You’re Battling Endometriosis
Grey days, Life After Endometriosis Surgery
Girl Talk: Battling through Endometriosis
The scars are a daily reminder of what my body has gone through. It’s important to mention that Endometriosis and stoma surgery’s are very very rare. I know one other lady (on Insta) who has had to have a stoma because of Endo. Usually stoma’s are put in because of cancer or other bowel-related complications, not typically because of Endometriosis.
Hope you find this helpful, please do have a read of some of the other blog posts I’ve done to get a better understanding of Endometriosis. As always my DM’s are always open on Insta. And it goes without saying really, that your comments and messages are constant reminders of why I raise awareness of Endometriosis and probably always will. xx
You are a strong woman and thank you for sharing.
Thank you lovely. xx
I’m so sorry to hear about this.
I didn’t know about the different stages of endometriosis.
Thanks for raising awareness about endometriosis.
I’m sending all my good vibes for your Donor egg IVF.
Thanks lovely. Need all the luck right now. xx
Thank goodness there is now awareness of Endometriosis, and you are helping people with your story. You really have been through a terrible time. I had trouble falling pregnant for five years, my daughter is now 23, during an endoscope to find out why I couldn’t fall pregnant my Gynaecologist discovered I had mild endo. I had no symptoms and didn’t know what it was at the time. Good luck with DEIVF xx
There’s so much more awareness than there was many many years ago. Sorry to hear you have mild endo lovely. It’s a horrible horrible condition. xx